And Stimming With Rainbows of Every Design

Thursday, June 18, 2009

Diagnosis and something that sounds a bit fishy.

I took the ADOS today. I'm now autistic rather than "Asperger's." I don't feel fundamentally changed.

I'm being told that it's best I start the Regional Center application process tomorrow.

The fishy-sounding thing is this: I'm being told that I need a guardian appointed through the Regional Center in order for anyone to get Power of Attorney if I'm unconscious and unable to make medical decisions for myself. I questioned whether this was really necessary, as non-disabled people are able to sign forms to grant others Power of Attorney. Apparently I can't do this as a disabled person unless I have a guardian? That sounds really bizarre to me, and given what I know of guardianship/conservatorship, I don't want to rush into it. But I'm being told I must do it before eighteen or it will get too difficult.

Does anyone know if the statement I heard on that topic is accurate?

Wednesday, June 10, 2009


I was on vacation and came back to my Statcounter to find a surge in people coming to my blog. It's less nerve-wracking now than before I determined the cause. I'm also a bit relieved that I never modified those posts. After my mother read those particular entries last fall, she told me it would have been better if I acknowledged that such "intentional communities" are good for some people and that I was only speaking for myself. I couldn't do it. It might have made the post more palatable to some people, but the particular power structures involved are wrong no matter who's concerned.

On another topic entirely, I'm very tired of how phone-focused many doctors are. I've not been able to email my medical doctors or my psychiatrist (I don't even have their email addresses) and it's made certain things very difficult. Speech may be supposed to be more authentic, but when I speak in medical or psychiatric contexts, I tend to end up reciting stored dialogue about how I'm fine when I'm not "fine" at all. There's a psych med I started a few weeks ago that I'd really like to get off of (Lamictal), but the only way I have of contacting my psychiatrist between appointments is by phone (she claims that she gets a better handle on how I'm "really" doing that way), and that's not workable for me at this point in time.